Hi All

Welcome to my blog, as most of you know I was diagnosed with Bone Marrow Cancer in July 2008, after 6 months of treatment with Chemo and Steroids my cancer has reduced tremendously, I have now had a stem cell transplant which will keep the cancer dormant for longer, my stem cell treatment started on January 5th with Chemo and I had the transplant in March. I am now home but having to take life very slowly while my cells build up, I will be back to hospital several times over the next few months for blood tests and treatment.
Please feel free to pass this address to anyone and to add comments and join in to help keep me sane (or is it too late for that).
Thanks to all at Royal Liverpool Hospital who have made this year possible, and to all the staff who have worked so hard to eventually harvest the cells and the wonderful staff on the transplant unit, A special thanks to Jamie who is as daft as me when I need humour but an absolutely fantastic support from day one (shame he and most of the staff support LFC but I can't hold that against them).

Ivan 07957361356
ivan.thomason@ntlworld.com

30 May 2009

Label

At the moment I find it hard to lift and carry, we are being sensible, Averil keeps an eye on me and does most of the lifting and carrying herself. For instance we were at the dump the other week, Averil was getting heavy bags from the boot and I was sitting watching. Today we went to B and Q for fence stain, Averil carried a large tub of stain and I walked along with a paint brush with people thinking "lazy man".

I feel that I need a label round my neck saying "cancer, can't lift or carry" Mick says I should have one saying "Lazy Male Chauvinist Pig, live with it, she has to".

28 May 2009

Hospital

Early Blood tests this morning and then a coffee waiting for results, all seems ok, am coming off some of the medication for acid but staying on the rest, giving the water tablets a little longer but they appear to be doing the job. I am having another echocardiogram on the 10th June just to make sure all ok with my lungs after the fluid problem.

26 May 2009

Cancer Research Uk

It's now less than 6 weeks to Diane's "Cancer Research Race For Life". Diane has already been promised £742.00. Thanks to all who have supported her or support Cancer Research in any way.

It's Not Too Late

And thanks Diane too!!!!!!

23 May 2009

Results

Blood results were good from hospital only the neutrophils are a little low at 1.1, the doctor is ok with them still being over 1.00, just looks like I have to stay off the salad a little longer.
Had a good stayover in Leeds, nice to get away for a change of scenary.

20 May 2009

Night out

All going well at the moment, the antibiotics and water tablets seem to be doing their job. I am in hospital on Thursday for blood tests and medication.
For a little bit of therapy we have booked into a hotel in Leeds for Friday night, why not????????

17 May 2009

The good doctor

Sarah I don't know what was in those antibiotics you prescribed but after 48 hours and 5 tablets things are clearing up nicely.
It's good to be breathing better again and not waking in the night, the bruising on my back has gone down too (that's because Avi has stopped kicking me at 3 in the morning when I cough).

16 May 2009

Extra hospital trip

Over the last week I have had some trouble breathing after walking or when sleeping, waking up and fighting more than usual for breath. On Friday morning I phoned the transplant ward and they said to come to clinic. Doctor Sarah sent me for a chest xray and I have fluid on the lungs, (quite a lot looking at the xray) I am now on antibiotics and water tablets with ventalin as backup.
I am already feeling a little better after 24hours, I hope the improvement continues.
The hospital are fabulous, it's was good to see nurse Julie in clinic ( she wasn't too happy with me but only because Man U have almost won the premiership again,).
Must go now, the water tablet is working.

14 May 2009

All good things come to an end

After 6 weeks the razor is out again, shaving every 2 days, it was good while it lasted, maybe the hair on my head will start to grow too.

10 May 2009

Jabula

Today we went to Jabula, our favourite South African restaurant, its 4 weeks since I came out from hospital and we have been very careful with the food I have eaten, we are very confident with the cleanliness and the standard of cooking at Jabula so knew it would be perfect for a meal out, we were not disppointed.

Have a look at Jabula.

8 May 2009

Blood Results

The stitch came out very well and the scar looks very clean.
The blood counts were better than expected so my medication has changed from nebulizer to tablet form which makes things easier.
Haemaglobin 13.9, platelets 143, White cells 11.8 (a little high) and neutrophils 3.0.
I am next at clinic 2 weeks today.

6 May 2009

Hospital Thu/Fri

I am at hospital tomorrow (Thu) for the Hickman line stitches out and blood tests and there on Friday for blood results and clinic, I have a tickly cough at the moment but not too bad, it's probably because the neutrophils are still low but will wait and see.

4 May 2009

Home to bed

Yesterday we went to Tynemouth on the coast, Avi and Jess went walking but I had done enough on Saturday so stayed in the car reading.
The evening was spent having another lovely meal, I don't know where the time went (maybe the 3.5 hours sneaked off with the wine, I only has 2).
There will definately be a long lie in tomorrow.
Just what the doctor ordered.

2 May 2009

Holy Island

The weather has been fantastic today, we left for the Holy Island of Lindisfarne at about 10.00 ready to catch the low tide at 11.30 to drive across the causeway to the island, we weren't disappointed, what a lovely area of Northumberland, Averil walked a lot and Jess walked and then went down to the water, I did a little walking but at the moment I know my limitations, I could drive up to the castle using my blue badge so that was a great bonus.
We drove on to Berwick and had a good look around the shops before driving back for a lovely meal. The good weather has made it a great day, let's see what Sunday brings.

Please have a look at our weekend photographs.